SILVERTHORNE — Think about residing your complete life feeling carsick. That’s what Steve Schwier of Silverthorne says his existence is like with Meniere’s illness, a syndrome that assaults the interior ear and, because of this, listening to and steadiness.
A day in Steve’s life contains the spins of vertigo. Then there’s the constant dizziness and nausea. Every morning when he wakes, he can immediately inform how the day goes to be. On an excellent day, he may be capable of hike or golf. On the worst days, he can’t get off the bed.
Since he was recognized in 2013 — a 12 months after he started feeling signs — his life has modified fully. He needed to go away his job as a heavy-equipment operator to work a much less demanding job at Keystone Resort’s golf programs. However even that gig proved an excessive amount of to deal with with Meniere’s, a confounding illness for which medical doctors don’t know the trigger.
“So my job now could be managing my illness full time,” Steve, 53, mentioned. “Every single day, all day, I spend the day making an attempt to not really feel sick.”
Residing with such a uncommon situation has eliminated pastimes and passions from his life. He stopped taking part in reside exhibits together with his band Straight Creek Drive after Meniere’s took his means to play the bass guitar. It’s the identical destiny rock star Huey Lewis not too long ago suffered due to Meniere’s.
As for sports activities, he can’t snowboard anymore. He can’t play in aggressive soccer, volleyball or softball leagues like he used to. That mentioned, Steve plans to traverse 1,295 miles to his hometown within the suburbs of Columbus, Ohio, to raise money and awareness for the disease. He’ll give you the chance to take action due to an electrical bicycle.
For Steve, e-bikes have been a godsend. His youthful brother Dave will be part of him Sept. 1 for the charitable journey. The brothers hope to boost $10,000 to donate to the Deaf to Meniere’s foundation and the American Hearing Research Foundation.
“It’s sort of opened the door,” Steve mentioned. “The distinction with the e-bike is, I can hop on a mountain bike and drive round Summit County a little bit bit, however with the quantity of exertion it takes, it causes me to get dizzy. However the e-bike takes stress off my physique as a result of the electrical help actually permits for me to focus extra on my balancing then on the exertion it takes to journey.”
The Schwier brothers plan to journey a complete of 15 days, averaging 100 miles per day. Dave will likely be driving the chase van behind his older brother in addition to documenting the journey and the totally different Individuals the brothers meet and educate about Meniere’s on social media. Most nights, the brothers will escape the tents and tenting gear from the van to camp wherever makes probably the most sense — whether or not that be in a brand new buddy’s entrance yard or at a delegated tenting website. One evening per week, Steve mentioned, the brothers will relaxation up by sleeping at a resort.
On the journey, Dave would be the little brother sidekick as soon as once more to the older brother he described as “aggressive.” It’ll be the newest athletic achievement for the Schwier brothers.
“I’ve seen him undergo this torturous illness for a few years now,” Dave, 52, mentioned. “So when he referred to as me to be assist for the journey, it was a no brainer to drop every part and say, ‘sure.’
“I’ve been tremendous impressed together with his drive and can to do that, and I’m assured he’ll accomplish precisely what he units out to do. Meniere’s is a brutal illness, and this isn’t a mission to be taken flippantly. It’s past the creativeness proper now what it will imply to the worldwide Meniere’s neighborhood when he rides into Columbus on the finish of September.”
And if the journey goes nicely, there’s a wintertime problem Steve wish to attempt.
“I’d actually prefer to get again on my snowboard some day,” Steve mentioned. “If this journey is profitable, I feel that’s one other step ahead, perhaps getting again on snow.”